

A new chapter for mom
A new career chapter has started in my life. It's not the one I could have predicted and I am sure many people didn't see this decision...


We wait for help and other sensitive topics
If I told you I was disappointed and losing my patience with Grant's future admittance that would be an understatement. Any time there...


An Update from the Carlson's//August 2017
I wrote this originally on Aug 3: Today marked the last day of summer school for lil man. His PCA and I wondered how things might change...


One year anniversary as a "tubie" parent
I just noticed the date this morning. It's almost July 4th and I feel nothing but gratitude that we are not at the ER, that we are not...


First week off of school (an over-due update)
Pictures are from Grant's 10th b-day on June 13. Will the school year 16-17 be the year of the g-tube? Could Grant be ready to eat again?...


The reality of caregiver stress
It has been a particularly stressful and hard week in our house. We dropped one med with the guidance of the pysch. G had the GI...
Another challenging April (and it has nothing to do with awareness month)
I try to imagine a day with no self-injury. It's easy to imagine, but seems so hard for Grant. He doesn't want to wear his gloves as much...
The worry and the realities ahead
Below is a writing to share my mother-type worries. It is my attempt to share a piece of myself with you. It is not aimed at anyone and I...
I'm going to stay home
I remember walking down the hall of U of MN Masonic Hospital. It was a private conversation. I needed to vent and my mom was willing to...


It's still not his turn and other news
It's already February. Some how this happens. As I awoke today at 6 am, I found myself with a solid chunk of time to myself, which is...