Why we are asking for financial assistance...

Please click here.

Grant is on a wait list for a hospital in Baltimore, MD. The have him on a long wait list of children similar to him. So we do not know exactly when he will finally get his turn. It only has 16 beds. There are many children who need their expertise.

This hospital is so expensive they don't tell you how much it costs and won't consider your child unless you have insurance. Luckily, I am not asking for help for that cost. We are blessed and have managed to get him on BCBS of MN. As long as I work full time, we will be ok.

When I signed him up for this hospital back in late June, I imagined myself getting a small, furnished apartment so I could learn about what he is doing and not feel like I was just dropping him off. I even let my employer know that was the plan. So I did my research and entered the world of insurance hell. MA/TEFRA which is the only insurance Grant needed before, was proving to make it nearly impossible to get approval for an out of state single case agreement. I didn't have time to waste. My employer allowed open enrollment for a few weeks and despite the hefty $20,000 premium; I went for it. Well, it's Nov 12 and I still don't have a yes from MA. So here we are. I will have to work FT so Grant can go to KKI and afford my health insurance. My heart hurts. Tears form easily. This was not what I wanted for our family.

I can't afford to not work. So I will. I have tried to accept this.

Which leads us to plan B. Grant lives in Baltimore and we visit. Ideally we will get out there at least twice a month on the weekends. I don't know. I don't know. I don't know how to leave my 9 year old in MD and not be with him, but if I have to, then I must visit him as much as I can afford. I don't know what I can afford. Scott and I might need to take turns going out there. We most likely will be connected to a Ronald McDonald House, but maybe not. We don't have enough details for me to share any of that with you today.

Grant will be out there for at least 4 months and up to a year OR longer. My gut is twisting thinking about leaving him with other adults.

I don't know how much money I need. If we can raise over $50K maybe I can stay out there with him, but if I can't...I am asking for assistance to get out to him frequently on the weekends and holidays. Flying 2 adults back and forth is the only way we can do this. Road trips simply will take too long for weekend visits. And I don't know what to ask for because we have no idea how long Grant will be out there. Ideally we would fly people like his behaviorist and teacher out there for training too.

Maybe some of you are wondering if there are scholarships or county money. The simple answer is no, not that I am aware of. When Grant goes into hospital, he will lose his county waiver money until he is out of the hospital.

If you donate today, it will go into a paypal account we have set up for our travel and living expenses (if I do end up living out there with him).

A lot of people reached out to me this summer. Some people said they can't help me or don't know how to. I humbly am telling you that this is how you can help my family. Grant will go to KKI, we simply just don't know when. I thought he was going to get the call this month. But, then I didn't. So I update them like crazy. I show them pictures, videos and write daily about his life. We try different meds. We work closely with doctors and specialists as we have for YEARS. Nothing much is helping. 2016 has been the hardest year of my life. I don't know what is worse than this nightmare. I will keep updating this page as I have time and energy. Thank you.